{"created":"2023-05-15T16:29:24.315173+00:00","id":137,"links":{},"metadata":{"_buckets":{"deposit":"6ce06756-e046-4456-97d7-c894a209607c"},"_deposit":{"created_by":2,"id":"137","owners":[2],"pid":{"revision_id":0,"type":"depid","value":"137"},"status":"published"},"_oai":{"id":"oai:nagasaki-u.repo.nii.ac.jp:00000137","sets":["12:13"]},"author_link":["621","615","620","622","614","618","624","616","617","623","619"],"item_2_biblio_info_6":{"attribute_name":"書誌情報","attribute_value_mlt":[{"bibliographicIssueDates":{"bibliographicIssueDate":"2020-09-29","bibliographicIssueDateType":"Issued"},"bibliographicIssueNumber":"9","bibliographicPageStart":"e0238643","bibliographicVolumeNumber":"15","bibliographic_titles":[{"bibliographic_title":"PLOS ONE"}]}]},"item_2_description_4":{"attribute_name":"抄録","attribute_value_mlt":[{"subitem_description":"Background Nodding syndrome (NS), is an unexplained form of epilepsy which leads to stunted growth, cognitive decline, and a characteristic nodding of the head. Current data about its impact on households \nin Uganda is scarce. Therefore, this study aims to assess the economic burden of the persistent morbidity of NS on caregivers in affected households in Northern Uganda. Methods A cross-sectional cost-of-care study was conducted from January 2019 to February 2019 in Lakwela village-Northern Uganda\n in 14 households, who are members of a community-based organization(CBO)established in the village with the support of a Japanese research team, (Uganda-Japan Nodding Syndrome Network).Data was collected through questionnaires. Both direct (medical and non-medical) and indirect (informal care) costs of caregiving were assessed. Indirect costs were valued using the human-capital method as loss of production. Results Direct costs constituted a higher proportion of costs for NS households, accounting for on average 7.7% of household expenditure. The annual weighted mean cost per NS patient was estimated at 27.6 USD (26.4 USD direct costs, 96.2% and 1.2 USD indirect cost, 3.8%). Average time spent on informal caregiving was 4.4 ±1.7 (standard deviation) hours/ week with an estimated annual informal caregiving cost of 24.85 USD and gross domestic product (GDP) loss of 412.40 USD. Conclusion Direct costs due to NS are still high among households in this study. More studies are needed to investigate measures that could help bring down these costs and equally reduce the day-to-day disruption of caregiver’s activities; consequently, improving the lives of these \naffected households and communities.","subitem_description_type":"Abstract"}]},"item_2_description_63":{"attribute_name":"引用","attribute_value_mlt":[{"subitem_description":"PLoS ONE, 15, art.no.e0238643; 2020","subitem_description_type":"Other"}]},"item_2_publisher_33":{"attribute_name":"出版者","attribute_value_mlt":[{"subitem_publisher":"Public Library of Science"}]},"item_2_relation_12":{"attribute_name":"DOI","attribute_value_mlt":[{"subitem_relation_type":"isIdenticalTo","subitem_relation_type_id":{"subitem_relation_type_id_text":"10.1371/journal.pone.0238643","subitem_relation_type_select":"DOI"}}]},"item_2_rights_13":{"attribute_name":"権利","attribute_value_mlt":[{"subitem_rights":"c 2020 Latio et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited."}]},"item_2_source_id_8":{"attribute_name":"EISSN","attribute_value_mlt":[{"subitem_source_identifier":"19326203","subitem_source_identifier_type":"ISSN"}]},"item_2_version_type_16":{"attribute_name":"著者版フラグ","attribute_value_mlt":[{"subitem_version_resource":"http://purl.org/coar/version/c_970fb48d4fbd8a85","subitem_version_type":"VoR"}]},"item_creator":{"attribute_name":"著者","attribute_type":"creator","attribute_value_mlt":[{"creatorNames":[{"creatorName":"Latio, Lugala Samson Yoane"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Nam, Nguyen Hai"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Shah, Jaffer"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Smith, Chris"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Sakai, Kikuko"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Stonewall, Shaban Kato"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Idro, Richard"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Makoto, Nishi"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Huy, Nguyen Tien"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Hamano, Shinjiro"}],"nameIdentifiers":[{}]},{"creatorNames":[{"creatorName":"Moji, Kazuhiko"}],"nameIdentifiers":[{}]}]},"item_files":{"attribute_name":"ファイル情報","attribute_type":"file","attribute_value_mlt":[{"accessrole":"open_date","date":[{"dateType":"Available","dateValue":"2020-12-16"}],"displaytype":"detail","filename":"PLoS15_0238643.pdf","filesize":[{"value":"585.3 kB"}],"format":"application/pdf","licensetype":"license_note","mimetype":"application/pdf","url":{"label":"PLoS15_0238643.pdf","url":"https://nagasaki-u.repo.nii.ac.jp/record/137/files/PLoS15_0238643.pdf"},"version_id":"a242f0fe-629b-43ec-b826-d416e32b1c6e"}]},"item_language":{"attribute_name":"言語","attribute_value_mlt":[{"subitem_language":"eng"}]},"item_resource_type":{"attribute_name":"資源タイプ","attribute_value_mlt":[{"resourcetype":"journal article","resourceuri":"http://purl.org/coar/resource_type/c_6501"}]},"item_title":"Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda","item_titles":{"attribute_name":"タイトル","attribute_value_mlt":[{"subitem_title":"Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda"}]},"item_type_id":"2","owner":"2","path":["13"],"pubdate":{"attribute_name":"公開日","attribute_value":"2020-10-23"},"publish_date":"2020-10-23","publish_status":"0","recid":"137","relation_version_is_last":true,"title":["Economic burden of the persistent morbidity of nodding syndrome on caregivers in affected households in Northern Uganda"],"weko_creator_id":"2","weko_shared_id":-1},"updated":"2023-05-16T04:21:24.026237+00:00"}